Bioethics™

edited by Joanna Zylinska

Introduction

Joanna Zylinska,
Bioethical Mutations in the Age of Capital

Designed as a supplement to my 2009 book, Bioethics in the Age of New Media -- which explores and experiments with some alternatives within bioethics -- this living book, Bioethics™: Life, Politics, Economics, is to act as a warning against the foreclosure of the aforementioned potential by casting light on this increasing marketisation of both life and bioethics under late capitalism. Performed as a form of ‘mutation’, the introduction to Bioethics™ proposes an academic-artistic method for reading and writing as genetic recombination, which can perhaps be seen as a biotech-era take on Roland Barthes’ ‘From Work to Text’.

The Business of Bioethics

Carl Elliott
American Bioscience Meets the American Dream

Jocelyn E. Mackie, Andrew D. Taylor, David L. Finegold, Abdallah S. Daar, Peter A. Singer
Lessons on Ethical Decision Making from the Bioscience Industry

Carlos Novas
What Is the Bioscience Industry Doing to Address the Ethical Issues It Faces?

Ezekiel J Emanuel, Trudo Lemmens, Carl Elliott
Should Society Allow Research Ethics Boards to Be Run As For-Profit Enterprises?

The Commercialization of Medical Research and Patient Care

T Lemmens, PB Miller
Regulating the Market in Human Research Participants

Aaron S. Kesselheim, Michelle M. Mello, David M. Studdert
Strategies and Practices in Off-Label Marketing of Pharmaceuticals: A Retrospective Analysis of Whistleblower Complaints

Adriane J. Fugh-Berman
The Haunting of Medical Journals: How Ghostwriting Sold “HRT”

Ben Goldacre
The True Purpose of a Drug Trial Is Not Always Obvious

Marcia Angell
The Epidemic of Mental Illness: Why? and The Illusions of Psychiatry

David Henry
Doctors and Drug Companies: Still Cozy after All These Years

Biomanufacturing and Biopatenting

Antony Taubman
The International Patent System and Biomedical Research: Reconciling Aspiration, Policy and Practice

Arti Rai, James Boyle
Synthetic Biology: Caught between Property Rights, the Public Domain, and the Commons

Paul Rabinow, Gaymon Bennett
Synthetic Biology: Ethical Ramifications 2009

D G Gill
“Anything you can do, I can do bigger?”: The Ethics and Equity of Growth Hormone for Small Normal Children

Joanna Zylinska
Playing God, Playing Adam: The Politics and Ethics of Enhancement

The Body as Property, Commodity and Gift

Tarif Bakdash, Nancy Scheper-Hughes
Is It Ethical for Patients with Renal Disease to Purchase Kidneys from the World's Poor?

Mark Schweda, Silke Schicktanz
The "spare parts person"? Conceptions of the Human Body and Their Implications for Public Attitudes towards Organ Donation and Organ Sale

Antonia J Cronin, David Price
Directed Organ Donation: Is the Donor the Owner?

Howard Wolinsky
The Thousand-Dollar Genome. Genetic Brinkmanship or Personalized Medicine?

Global Health Inc.

Robert Mitchell, Catherine Waldby
National Biobanks: Clinical Labor, Risk Production, and the Creation of Biovalue

Kammerle Schneider, Laurie Garrett
The End of the Era of Generosity? Global Health amid Economic Crisis

Jacquineau Azétsop, Stuart Rennie
Principlism, Medical Individualism, and Health Promotion in Resource-poor Countries: Can Autonomy-based Bioethics Promote Social Justice and Population Health?

Stuart Rennie, Bavon Mupenda
Living Apart Together: Reflections on Bioethics, Global Inequality and Social Justice

The Art of Life Between Speculation and Appreciation

Ionat Zurr, Oron Catts
Big Pigs, Small Wings: On Genohype and Artistic Autonomy

Adam Zaretsky
The Workhorse Zoo Art and Bioethics Quiz

Critical Art Ensemble
The Flesh Machine

Joanna Zylinska
If It Reads, It Bleeds; 3' video, 2010



Attributions

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To download a pdf version of this living book (in a slightly different incarnation), please right-click here, click on 'Save Link As' ('Download Linked File' on a Mac) and save it on your computer. It's quite a large file - 15MB, so downloading it onto your computer will take far less time than trying to open the pdf directly from its current location. However, if you prefer to just read it online, click here.